SynGAP Research Fund, Inc. dba cure SYNGAP1 logo

HARPER'S HOPE
- A Cure for SYNGAP1 -

Syngap Awareness Day is June 21st. I'm fundraising in honor of my granddaughter, Harper, who has SYNGAP1, a neurodevelopmental disorder that causes epilepsy, intellectual disability, autism, and more.

Fundraising Goal:
$10,000
Matching Challenge:
I will match the first $5,000 donated!
Timeline:
Today through September 15th, Harper’s 10th birthday

Harper was diagnosed with SYNGAP1-related disorders in May 2018. Since then, her parents, Jen and John, have worked tirelessly to provide her with the care she needs, while also raising Harper’s four siblings and working full-time.

Parenting a child with SYNGAP1, as well as managing the numerous debilitating SYNGAP1 symptoms, is incredibly challenging.

Knowing your child may never live independently and requires 24/7 care is heartbreaking.

Despite the devastating diagnosis of SYNGAP1, Harper continues to progress and brings so much joy to our family. Her giggles—especially when she’s with her "Geepa"—are pure magic.

Thank you for supporting the SynGAP Research Fund, a nonprofit driving cutting-edge research into treatments and a cure. Your gift gives hope to Harper and countless others like her.
Together, we can cure SYNGAP1.

- George

Help cure SYNGAP1 today!

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Frequently asked questions

What is the significance of June 21?
The genetic address of Syngap is 6p21.32, so we celebrate Syngap Awareness Day around the globe on 6.21 or June 21st and treat June as Syngap Awareness Month.

What are SYNGAP1-Related Disorders?
SYNGAP1-related disorders are rare neurodevelopmental disorders caused by a de novo (non-inherited) mutation in the SYNGAP1 gene, which hinders the production of SynGAP protein—an essential component for proper brain function and development. This protein deficit results in a spectrum of challenges including intellectual disability, epilepsy, autism, hypotonia (muscle weakness), speech and language disorders, behavior issues, sleep disturbances, coordination difficulties, visual abnormalities, and more. Since 2018, SynGAP Research Fund (dba Cure SYNGAP1) has raised and granted over $6M to accelerate SYNGAP1 therapeutics. Your support will help move us closer to life-changing treatments and uplift hope for SYNGAP1 families.

For SYNGAP1 info, visit cureSYNGAP1.org.      To learn more about Harper, click here.